Helen Morement

In 2002, Helen Morement founded AMMF – The Cholangiocarcinoma Charity.  It was then the world’s first charity dedicated solely to cholangiocarcinoma (CCA) and today, AMMF remains the UK’s only dedicated CCA charity, now working nationally, across Europe and actively collaborating globally.

AMMF provides information and support to those who need it, campaigns to raise awareness of this devastating disease, and encourages and supports specialised research teams in their work towards better diagnostic techniques and treatments and, ultimately a cure.  To date, AMMF has given over £3m (three million pounds sterling) in research grants.

In 2015 AMMF initiated World Cholangiocarcinoma Day and in 2018 the Global Cholangiocarcinoma Alliance, a multidisciplinary group of international cholangiocarcinoma experts with the shared vision of significant and increased global awareness, and progress for diagnosis, treatment and, eventually, cure.

Helen is an Executive Committee member of Cholangiocarcinoma-UK, a BASL (British Association for the Study of the Liver) special interest group, and a Co-Chair of the Steering Committee of the Global Cholangiocarcinoma Alliance.  She also actively collaborates with ENS-CCA (the European Network for the Study of Cholangiocarcinoma).

Helen acts as patient representative on a number of clinical trials groups, and reviews clinical trials and patient guidelines information for UK bodies and for international organisations.

As a Board Director of Cancer52, a UK organization with 100+ rare cancer organisation members,  Helen works to address the inequalities that exist in policy, services, and research within the rare cancers area.